Huntington’s Disease Clinical Research Congress 2025 – Day 1
HDBuzz is attending the first Huntington’s Disease (HD) Clinical Research Congress in Nashville, Tennessee, organized by the Huntington Study Group (HSG) and CHDI Foundation.
The conference brings together hundreds of scientists, doctors, and industry representatives to discuss HD clinical research and care.
Day 1: HD Community Research Day
Day 1 of the meeting focuses on topics relevant to families, with speakers discussing various aspects of HD research.
Demystifying Clinical Trials
The first session featured an interview-style panel with experts, including:
- Arik Johnson, Chief Mission Officer at HDSA
- Dr. Alexander Dalrymple, neurologist at UVA
- Dr. Daniel Claassen, CEO of HSG
- Frances Saldana, HD advocate and President Emeritus of HDCare
The panel aimed to explain clinical trials, covering protocols, endpoints, participation experience, and questions to ask.
Author's summary: HDBuzz reports on the Huntington's Disease Clinical Research Congress 2025.